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Direttore responsabile Raffaella Zelia Ruscitto
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Malattie rare ad insorgenza tardiva al centro di un workshop a Giurispurdenza

Il sapere scientifico degli specialisti italiani e quello degli specialisti francesi si confronteranno nel workshop “Malattie Neurogenetiche e Neurometaboliche rare a esordio in età tardiva”, che si terrà giovedì 10 e venerdì 11 settembre presso la facoltà di Giurisprudenza.
L’iniziativa, coordinata dal professor Antonio Federico, direttore U.O.C. Neurologia Malattie Neurometaboliche del policlinico Santa Maria alle Scotte, darà vita a un dibattito sul tema della malattie neurologiche rare in età adulta, quali per esempio le demenze degenerative, le atassie, le neuromiopatie, la sclerosi laterale amiotrofica. I ricercatori e luminari italiani e francesi esporranno la propria esperienza e il proprio sapere, mettendoli a confronto per fare il punto sulla stato della ricerca in Francia e in Italia.
“Questo workshop italo-francese – afferma il professor Federico – sottolinea l’importanza del raffronto e della condivisione tra studiosi, in particolar modo per quanto riguarda il settore delle neuroscienze che è in continua evoluzione. E’ fondamentale – conclude il professore – non essere troppo autoreferenziali, ma relazionarsi sempre alle diverse realtà territoriali per diffondere le novità e i traguardi raggiunti in questo settore”.
In particolare verrà presentato il modello toscano per le malattie rare, che prevede una rete territoriale, coordinata da un esperto.
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